Have you or someone in your family experienced a sudden cardiac arrest between 1 and 50 years old in NSW?

If so, we would like your help with a study called the NSW Sudden Cardiac Arrest Registry, run by Associate Professor Jodie Ingles, Head of the Clinical Genomics Laboratory at the Garvan Institute of Medical Research.

Sudden cardiac arrest happens when your heart starts beating in a dangerous rhythm that stops it from pumping blood properly around your body. Some people survive a sudden cardiac arrest, but sadly, most people die suddenly without any warning signs.

Please complete our Expression of Interest form

How to participate

If you don’t live in NSW but otherwise meet the eligibility criteria, please contact us to discuss participation options (

). If you live in Victoria, we invite you to consider joining the

 Both registries are working closely to understand sudden cardiac arrest nationally.

This study has been approved by Sydney Local Health District Human Research Ethics Committee X22-0409 (RPAH zone)

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Lab page

Using genomics and genetic counselling to equitably improve care, clarify diagnosis, refine risk information for families with genetic cardiovascular diseases, and implement these findings into healthcare.

Clinical Genomics Lab

Related Lab

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Aiming to better understand the causes of sudden cardiac arrest in young people.