Immunodeficiency real lives

Immunodeficiency real lives

William Ashburner and his sister Julia with Spaniel, Ruby
William Ashburner and his sister Julia with Spaniel, Ruby

WILLIAM ASHBURNER

The Ashburner family, Stuart, Liz and their children, Julia and William, live on the NSW central coast. ‘When the children were younger, we enjoyed a healthy, busy family life with both William and Julia playing soccer and being involved in the local surf club,’ said Stuart.

Then in 2011, 5-year-old William developed double pneumonia. When this recurred, testing began and in 2013 William was diagnosed with the rare disorder, X-Linked Lymphoproliferative 1 (XLP1).

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Tudor in hospital
Tudor in hospital

TUDOR MAITLAND

Shannon and Daniel Maitland-Moore welcomed Tudor as the latest addition to their family in 2012. ‘We were a happy family, living in the country and adjusting to life with two gorgeous kids,’ said Shannon.

‘For the first few months while Tudor was being protected by my antibodies he was healthy, and at six months was chubby, rosy-cheeked and eating well.’

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