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Dr Amanda Willis

Genetic Counsellor
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Dr Amanda Willis

Amanda Willis is a research genetic counsellor with the Kinghorn Centre for Clinical Genomics at the Garvan Institute of Medical Research. Amanda has several years’ experience as a cancer genetic counsellor and has worked in both Australia and the UK. Amanda has also completed a PhD investigating th

Biography

Amanda Willis is a research genetic counsellor with the Kinghorn Centre for Clinical Genomics at the Garvan Institute of Medical Research. Amanda has several years’ experience as a cancer genetic counsellor and has worked in both Australia and the UK. Amanda has also completed a PhD investigating the psychosocial impact of genomic information.

Amanda works on the My Research Results platform, which connects research participants with their genetic information. Through this work, Amanda aims to improve health outcomes by enabling research participants to access their genetic information. This includes providing genetic counselling to support decisions about genetic information and enabling people to take action to improve their health. 

Amanda Willis is a research genetic counsellor with the Kinghorn Centre for Clinical Genomics at the Garvan Institute of Medical Research. Amanda has several years’ experience as a cancer genetic counsellor and has worked in both Australia and the UK. Amanda has also completed a PhD investigating the psychosocial impact of genomic information.

Amanda works on the My Research Results platform, which connects research participants with their genetic information. Through this work, Amanda aims to improve health outcomes by enabling research participants to access their genetic information. This includes providing genetic counselling to support decisions about genetic information and enabling people to take action to improve their health. 

Selected Publications

Willis, AM, Terrill, B, Pearce, A, McEwen, A, Ballinger ML and Young MA. My Research Results: a program to facilitate return of clinically actionable genomic research findings. Eur J Hum Genet (2021). https://doi.org/10.1038/s41431-021-00973-z. Full text: https://rdcu.be/cyKRv

Willis, AM, Smith, SK, Meiser, B, et al. Influence of lived experience on risk perception among women who received a breast cancer polygenic risk score: ‘Another piece of the pie’. J Genet Couns. 2021; 00: 1– 12. https://doi.org/10.1002/jgc4.1384. Full text: https://onlinelibrary.wiley.com/share/VEP6BADNNNEWZG86ABXW?target=10.1002/jgc4.1384

Yanes, T, Willis, AM, Meiser, B et al. Psychosocial and behavioral outcomes of genomic testing in cancer: a systematic review. Eur J Hum Genet 27, 28–35 (2019). https://doi.org/10.1038/s41431-018-0257-5. Full text: https://rdcu.be/cyP1D

Willis, AM, Smith, SK, Meiser, B, Ballinger, ML, Thomas, DM, Tattersall, M and Young, MA (2018), Development and Pilot Testing of a Decision Aid for Genomic Research Participants Notified of Clinically Actionable Research Findings for Cancer Risk. J Genet Counsel, 27: 1055-1066. https://doi.org/10.1007/s10897-018-0223-y. Full text: https://onlinelibrary.wiley.com/share/YA3KV3I6WJNY6PNI9XIA?target=10.1007/s10897-018-0223-y

Willis, AM, Smith, S, Meiser, B, Ballinger, M, Thomas, D and Young, MA (2017), Sociodemographic, psychosocial and clinical factors associated with uptake of genetic counselling for hereditary cancer: a systematic review. Clin Genet, 92: 121-133. https://doi.org/10.1111/cge.12868

More Garvan Publications